Yep They Sent Me Back! :)
If one word were to describe the experience it would be Amazing
Hello All, Actually I've been back for a while now,
so sorry for delay at contacting you. Also I'm sorry for not keeping
many of you posted. We did have internet access which was a blessing,
but limited ability and time to email. Some people who had been there
earlier advised to bring plenty of books for the boring waiting time.
So much was happening we didn't have a boring moment.
It was an absolutely amazing experience, besides the surgery, it was an amazing
experience I look forward to sharing with you.
Recap, the surgery involved transplanting olfactory ensheathing glia (OEG)
cells to areas both above and below my injury site.
They made an incision on my injury site, then they went in to my spinal cord
and injected 500,000 cells above the injury and 500,000 below. The
procedure takes about two hours, but mine took a little longer. Dr. (Hongyun)
Huang usually makes two small incisions -- one above and one below the site
-- but because I use my neck so much for typing and other things, there is
a lot of muscle mass and fatty tissue there so he had to make one long incision.
The procedure went very well and his recovery went smoothly.
I was very lucky,. I was told the side effects of the surgery would be bad
headaches and fever. I had no headache and no fever. I was really blessed.
Three days after the surgery, I was up and in my chair. It only took
a few days until I noticed some positive reactions. I was laying there,
and the doctor felt behind my back and said I was sweating, That was
amazing because I'm not able to sweat below my injury site. Being able to
cool my body on my own is a big plus. I was skeptical though.
A couple days later when up in my chair I could actually feel I was sweating,.
Jeanie took off my T-shirt before I went to bed, and when she held it up
there was a big old patch of sweat on the lower part of my back. We missed
the chance but I wanted to take a picture because it was something I could
never do before. Doctors have told me I can expect I will begin to
perspire in other areas of his body as time goes by.
A couple days later, while watching a billiard game, I felt someone touch
my arm. A nurse came in to check my pulse and I felt her grab hold
of my hand. I immediately looked at my arm and thought, Wow, this is
cool. I looked at her and smiled, she couldn't speak English and looked
at the TV and then back at me and smiled. She probably either thought
I was flirting or my team was winning.
I now have abnormal sensation in both my arms and down to my thumb and index
finger on his left hand. The sense is called "abnormal" because he can only
feel pressure and not temperature. If I concentrate real hard, I believe
I can make the muscles in my forearm and a little bit in my thumb start to
flicker. The signs look promising, but after 28 years, my muscles have
atrophied. It is going to take a lot of rehab. Even with a perfect connection,
you're not going to get much movement if you don't have the muscles to support
it. I plan to begin his physical therapy in a couple weeks.
Dr. Huang's patients often see a quick return of some sensations and movement,
then things level off for a while because the OEG cells grow very slowly.
Depending on the injury site, it can take quite a while before you see more
improvements. Some patients have seen returning function from the transplant
up to 18 months after the surgery. Dr. Huang always says each injury is different."
I was able to learn a lot more about Dr. Huang's research while there, we
had a few lengthy talks.
He is booked up way beyond November. He is collaborating with a couple
other hospitals to expand the program, but for now he only has seven rooms
so he can only have seven patients a month. He has been working with ALS
patients and is seeing good results. He has also worked with some MS patients
and gotten results from those.
I got to meet people from all over the world, from Germany, Netherlands,
Spain, Singapore and Japan."
I also got to do some sightseeing, thanks to a friend I met from Germany
while in the hospital. It was raining so we could just drive around,
but saw Teniman Square, Forbidden City and the Great Wall.
It is interesting to see how fast the west is coming in, One of the big news
stories while I was there was the introduction of convenience stores.
Hospital food being hospital food we were surprised by the amount of American
food he could order in to his hospital room, TGIF, Outback, McDonnell's and
more. The rapid rate of construction in Beijing was unexpected 24/7
plus their getting ready for 2008 Winter Olympics.
I met a guy from Japan who came into my room and asked if I was Leo Hallan.
I said, Yes.' and he said, Well, you're famous in our country, His son's
best friend had been paralyzed in an accident and he started to research
what was available for him on the Internet. He came across Press & Dakotan
articles and added links to them to his Web site he had dedicated to OEG
work and support services for those paralyzed. More about this guy
later.
Things went very well, better than could have been expected, So I just
thank everybody for their help and for their prayers. No doubt, without your
help it would not have happened. I also want to thank Jeanie, she is an angel.
Without her, my whole trip would never have been possible. I am truly blessed
to have her brought into my life.
I discovered that one thing I missed the most was the sight and voices of
familiar people. I look forward to seeing you all soon.
In Christ, Leo